Ah, home ….

Much as we try and make the best of our trips to the Marsden, enjoying the “couple time” we get, it’s always so nice to get home again!

By the time we went down to dinner last night, I was already dog tired but gamefully managed to down a gin and tonic before dinner, plus a small glass of red during! Not long after we’d eaten,the fatigue got the better of me I had to head back to our room, ready for bath and bed, ready to hit the Marsden for my scan …..

London today was beautiful – a bright sunny spring day which certainly seemed to put a smile on the public’s face for once!  Our trip t0 the imaging department at RM went completely to plan;

pet scanner

straight in, cannula inserted and then in for the scan.  Leaving the building down the iconic steps seen so often on tv, we spotted a vacant taxi, which had also clocked us and hailed it.  In less than ten minutes, we were back at Victoria Station and onto a home-bound train ….  home sweet home, until we return in 10 days’s time for the results. OLYMPUS DIGITAL CAMERA

 

 

 

 

 

 

 

Back in Lennie Henry’s bed …….

image So here we are, back up in Earl’s Court, ready for CT scan tomorrow at the Royal Marsden.  It doesn’t seem five minutes since we were last here.

Kev certainly got straight back into the swing of things by rapping at least two lots of ankles – well if you stand in the middle of a busy Underground looking gormless, it’s bound to happen!

Anyway, relaxing now in Lennie Henry’s bed before heading down for a welcome Happy Hour and dinner ……

Nail Update, Spring 2015 …..

Autumn 2014 ...

Autumn 2014 …

As mentioned last year, the chemo I was on just decimated my nails, which I had spent so long nurturing and growing! But gradually, they’ve been recovering, helped along by the fact that I’ve been on a chemo break! I used to look my nails and despair of ever having decent digits again but our bodies are constantly regenerating and nail growth is no different……

 

 

Fast forward to 2015 and I can see a vast improvement in my nails. I still have ridges but these are gradually growing out and although my nails still tend to break easily, I can at least wear polish again!

Spring 2015

Spring 2015

I’ve still been applying the Trind Kerotin Nail Restorer and will have to buy another bottle shortly.  This little beauty has certainly lived up to its promises. I’m also still applying my old faithful, the NutraNail Naturals serum which I swear by; think I’ve gotten through about three bottles during the course of the last year!  I’ve also been giving Sally Hansen’s Vitasurge Cuticle Gel a whirl but nothing seems to beat my all time fave, Champneys Cuticle Softener ….

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Kev’s Planet …..

kev chef

This time last year, Kev was a Facebook novice; he’d be the first to admit he had virtually no idea what he was doing when he logged onto his account which we set up for him! Then, during the spring when we discovered I had cancer, he was inundated with family and friends all wanting to know the up to date situation and he decided the easiest way to do this was to post regularly on his Facebook page.

All through the long summer months when we were travelling up to London three weeks out of every four for my treatments, Kev continued to update everyone via FB with his witty, sometimes irreverent and always honest opinions and thoughts until I suggested that he should start his own blog. After all, what he was doing already was blogging and it needed its own platform. So www.kevsplanet.com was created and now Kev has an outlet for his thoughts and opinions, which I think he finds cathartic at the very least. He’s quickly got the hang (almost) of the WordPress set up and spends a lot of his time  tapping away on his laptop and I’m so pleased he’s found a way to express himself which he can also share with others, particularly his love of cooking.

With our return to London this week again, I’m sure Kev will have plenty to blog about as we enter a new phase in our battle against this awful disease which has torn shreds out of our family.  Hope you’ll come along the ride …..

 

A year on …..

 

 

So, it’s a year exactly today, on our son’s birthday, since I was finally admitted to hospital after over two years of illness. So much has happened since then but I can remember each and every step of the long journey I’ve had to take, a journey I wouldn’t wish on my worst enemy.

image Who would have guessed after I’d been admitted and thought I was finally going to see an end to my problems that in reality, they were only just beginning? It’s the kind of case scenario you read about and hope never happens to you but when it does, you have options. Once the sheer shock of what was happening had abated, I was adamant that I would NEVER give in to this awful disease, that I would fight tooth and nail to give myself the best chance, no matter what treatment or procedures I would have to undergo.

Even so, had I been able to foresee exactly what I would have to go through, I might have panicked slightly but luckily, no crystal balls are available and so I’ve had to take each step as it comes.

No words are enough to thank the wonderfully caring staff at the Royal Marsden in Chelsea. They’ve filled our long, stressful visits with kindness, humour, truth and above all, a calming sense that all that can be done WILL be done.

After a break from chemo, which has given me time to gather my strength both physically and emotionally, I’m ready to return to the RM shortly to find out what the next steps are for me.

All I know is that I wouldn’t have got this far without the love and support of my family and close friends. I’m so proud of the way you’ve all handled such a hard, distressing year and I love you all. Xx

Look Good, Feel Better afternoon …….

th

Spent yesterday afternoon over in the MacMillan Centre at QA Hospital with a group of ladies, attending the Look Good Feel Better workshop.

Look Good Feel Better is the only worldwide cancer support charity, providing practical support for women struggling with the side effects from cancer treatment.

Finding out you have cancer can be daunting and life-changing and the added stress of the appearance related side effects of treatment can be demoralising and very hard to cope with. This can have serious consequences on self-esteem and confidence at a time when a positive attitude is very important.

Look Good Feel Better is dedicated to improving the self-esteem, confidence and wellbeing of people undergoing treatment, for any sort of cancer”

photo (21) Despite everyone there being in the throes of cancer treatment and all the baggage that goes with it, the afternoon was filled with laughter as we all dug into our huge goody bags of different high class  products and learnt how to get ourselves looking (almost) how we used to be …….

I was chuffed to get a bottle of Emporio Armani “Diamonds” EDP in my bag; what a great scent!!

Anyone who’s suffering from cancer can book themselves onto one of the LGFB afternoon workshops, just contact your nearest MacMillan Centre.

 

 

 

 

 

 

 

Coconut water shampoo? I’m in my element!!

coconut shampoo

So …… finally back to “proper” hair washing and although it’s a bit of a novelty at the moment, can’t say I’ve really missed all the hair care palaver over the last few months, to say nothing of the money saved!!  But hair’s arrived so it must be nurtured and looked after.

Was chuffed to find this latest Organix shampoo in Boots today; not only are Organix one of my favourite shampoos but to find a coconut water bubbly was great! Those who know me know I love coconut products and just love the taste of coconut water – walking round with said smell on my head will please me indeed ……

julie, feb 2015

 

Dame Judy Dench, I can give you a run for your money …….

 

 

photo (17)

Over the last few months, I’ve had dry sore lips, thanks to the chemo and have gone through Vaseline tins and lip balms like no one’s business but today found this little beauty, Lanolips Lemonaid and decided to give it a whirl. Not exactly cheap but if it does the job, then it’ll be well worth the payout. Smells lovely …….

 

photo (19)

Whilst mooching through Boots (ah it’s the little things that please me these days) I saw this on the holistic aisle and thought it might come in handy for those days when I don’t wake up with a smile on my face.  The fact it contains brandy is just a bonus ….. will let you know whether this works ……

 

 

… and I couldn’t go past the nail polishes without grabbing a couple of new ones for my collection!

photo (18)

Updates ….

snowdrops It’s been a while since I last blogged on my site so here’s the latest updates: my chemo was doing well and had shrunk my tumours considerably but back in October, I was rushed to hospital, unable to breathe and in a lot of pain. Turns out the chemo had caused some damage to my lung and resulted in me staying in hospital for a week, with blood transfusions and CT scan. I know I was extremely ill and it wasn’t a good time for me or our family.  I was informed that if I hadn’t have gone to A & E, I would probably have died …. that’s the second time last year.  Not good. However, back up to Royal Marsden for a follow-up re. the scan results and it was decided together that I wouldn’t start chemo again for a couple of months, to allow my poor old lung to recuperate!

So, I’ve been on a break from chemo since October and how great has that been! Tastebuds and appetite back to normal, fatigue all but gone  (although I still get very tired each day) and best of all, my hair has grown back, presenting me with my new look, that of a Judy Dench look-alike!!!  Being off the chemo does have its drawbacks, however, as I’m constantly aware in the back of my mind that things could be progressing in a way I don’t want. January 3rd, however, saw me back in A & E, delivered by ambulance this time, with severe pain in my liver area. Bloods showed that I could be suffering from an aneurysm or a kidney stone, so it was off to the CT scanner again! Both ruled out but follow-up at RM recommended, which we did and scan showed slight growth in the liver tumour but our consultant stated that nothing drastic would happen in the space of a couple of months before March so have to go along with that way of thinking.  Chemo still off the cards until March at least, so I’m  kind of living in a bubble at the moment, just waiting to see how things pan out.

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But there has been some good news (apart from my hair!) On January 28th, Leah and Si presented us with our third gorgeous grandson, Freddie Owen, at 12.04 am weighing in at 8 lb exactly.

 

Also, my nails, which had suffered so badly from the chemo, have also had chance to recuperate and are looking a whole heap better (although they are still slightly ridged and break sooo easily!) I’m still applying the Trind Kerotin, although not every day but it seems to have worked so I’ll stick at it ….

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Trind Nail Care products – chemo nail rescue!!!

My poor decimated nails!

My poor decimated nails!

One of the annoying side effects from the chemo I’m getting ( Gemcetibine and Docetaxel) is the damage I’m now seeing to my nails. Researching online, it seems the Docetaxel could be the main culprit but having a double whammy dose of chemo probably doesn’t help matters. Having spent sooo long getting my nails up to par (if you’ve read my earlier posts you’ll know I’ve battled with nail biting for years up until a couple of years ago when I decided enough was enough) and to watch my hard work go down the drain as the drugs took hold has been a bit of a blow. Still, never one to sit down and give up, I’ve researched chemo nail care and delved into products which could help restore my nails to some sort of normality.  Hopefully, this might help some of you in the same position.

Re-hydration is my main aim as my nails have gone so dry, despite using cuticle oil by the gallon. The white bits have gradually crept down my nails but strangely enough, just on both ring fingers! I’m not sure what I can do about those though …..

I’ve had no problem growing my nails throughout my ongoing chemo treatment – in fact they’ve grown like mad. I read that some people lose their nails due to Docetaxel so I guess I’m lucky in that respect.

I read some great reviews on the Swiss TRIND products and decided t0 Nail Balsam &  Nail Repair

give them a whirl  – after all I’ve got nothing to lose but healthy nails to gain. The two products I plumped for were the Nail Balsam and Nail Repair and then their Keratin Nail Restorer and Keratin Nail Protector.  I’ve had the first two products for about a week now and the latter have just arrived. Whilst ferreting around online I was reminded that nails are basically made of keratin and that restoring your nails to health meant restoring the keratin levels.  Having seen that TRIND also have keratin products I went and checked these out and decided that having some extras in my arsenal wasn’t a bad thing.

Using the products is easy: you simply apply a coat of the Balsam to clean, dry nails and leave for two minutes to soak in, then gently rub any excess into your nails. I  can see my nails absorbing the balsam!  Then, you apply a coat of the Nail Repair and allow to dry.  This helps seal in the balsam and helps strengthen your nails. Each day, you simply remove the products with a non-acetone polish remover and start the two-step process again.

Trind Keratin Nail Restorer & Nail Protector

Keratin Nail Restorer & Nail Protector

Already I can see some improvement in the condition of my nails and they are definitely more hydrated. On first applying the Keratin Nail Restorer, I’m really impressed at how quickly it’s absorbed and how incredibly soft and smooth my nails feel, even after one shot. I’ve left off applying the Nail Protector for a few hours as I want to apply some more of the keratin goodness throughout the day.

The keratin products are formaldehyde free although the Nail Repair does contain this. I’m not a fan of formaldehyde but on this occasion, I’m prepared to overlook this if it means my nails stand any chance of getting back to how they were pre-chemo!!

I’ll update on the progress ……..

 

Indian summer here in the UK?….

Flower filled meadow Well, we’ve had a great summer this year down here in the south of England.  Plenty of hot summer sun and hot sticky nights and it looks like we are enjoying an Indian summer as the temperatures are still brilliant as we hit the second week of September!

I’ve not been able to fully enjoy the lazy days of summer, having to travel to London three weeks out of four for my ongoing cancer treatment but it’s been great to see our wonderful capital in its summer glory.  Let’s hope the sun continues to shine and that autumn is late arriving this year!

Some good news: we are expecting our third grandson early in the New Year! Leah and Simon are having another boy, a little brother for Archie, who’s now 2.  Can’t wait!

Apologies for the lack of posts written but this is due to my illness.  I’ll try and get on here more, promise! :)

 

My Cancer Journey

Royal Marsden Cancer Charity Having always been a writer since I was very young,  tracking my thoughts and progress on my ongoing cancer journey seemed just another step forward.

If you want to keep up to speed, you’ll find my blog here:

http://cancerjourney58.blogspot.co.uk

You’re more than welcome to leave comments :)

 

Summer Fayre at Lee on Solent Infants School

tote bag Spending so much time at home recovering this year has meant that I’ve had to find things to do that didn’t involve either driving/lifting/too much exertion.  Luckily I’ve been able to stitch and make crafts for Jack’s upcoming Summer Fayre at Lee on Solent Infants School on Saturday 5th July.  Hannah and I have a table there where I’ll be selling my goodies with a portion of the proceeds going to the Royal Marsden Cancer Charity.

Come along and say hi to us, as well as supporting a great cause :)

Country Chickens make their entrance ….

If it’s one thing I love it’s chickens. Especially in my kitchen! You’ll find them everywhere on my shelves, on the window sills and on tea-towels and canisters. So when I needed a tote bag to cart stuff off to hospital, chickens were the only choice to decorate it!

The templates for these chooks came from a small quilting pattern a friend sent over from the States a few years’ ago. I’ve never gotten round to making the quilt but the chickens have now found a new home on the bag!

Now I’ve fished them out, I’m sure these cute chickens will find their way onto other things before too long ….

Country Chickens tote bag

Country Chickens tote bag

Country Chicken

Stitching aids recovery …..

Lavender embroidered cloth

Lavender embroidered cloth

I’ve been off work for several weeks now, post-op recovery, and although I’m not allowed to do too much and I still tend to get tired all too quickly, stitching is one thing I’ve done plenty of! With hopes of a good, sunny summer to come, I’ve been busy stitching some new cloths for our garden table …….

Dandelion embroidered cloth

Dandelion embroidered cloth

Daisy embroidered cloth

Daisy embroidered cloth

With still more time off work, I’m planning more stitching goodies, all of it hand-stitched as I’m not using my machine at the moment.

Apple cloth

Apple cloth

Just need some summer now to put my work to use :)